She was born with an ultra-rare genetic disorder. After my decades working in film PR, I now face the biggest campaign of all: the fight for her life My daughter Elsie has beautiful curls – blond like a little Botticelli cherub’s, hair that someone dark like me could only ever dream of. She lau...
Source: [Guardian International](https://www.theguardian.com/lifeandstyle/2026/sep/16/love-hope-pain-raising-elsie-rare-genetic-disorder)